My spine was exposed from vertebrae S1-S5. I had a tethered cord, clubbed feet and Arnold Chiari malformation all associated with spina bifida. My spinal surgery was the very first surgery I had and I did GREAT! A few weeks later I had a VP shunt placed in my head to help with hydrocephalus.
When I was less then 2 months old I had open-heart surgery to correct some of my heart issues, and to replace my mitral valve with a mechanical one. I came home from the hospital less than 30 days after that.
I was born with a cleft lip and palate, and both of those were repaired after I left the NICU. On Sept 12, 2003 I had my lip repair done, and I was smiling the very next day. On January 30, 2004 I had my palate repaired and I came home the very next day!
Nothing gets in my way! I am a happy girl and I am as strong as can be!
It has been a while now since my site was updated. In February 2006 my family and I went to Turks and Caicos with the Make a wish Foundation. I spent a whole week with Elmo himself! I love Elmo! He is my favorite character ever! When we got home from that trip we moved all the way from NY to Ga!
In May 2006 I had my second mitral valve replacement, this time the surgery was done in Georgia where we now live. I recovered quickly and have gone on to thrive as usual. As a matter of fact I will be starting school full time as of January 2007! I am really excited to make new friends.
I have surgery coming up this march for my clubbed foot repair. Remember to keep me in your thoughts and prayers for a quick recovery! I hope to take my first steps soon!
Thank You for visiting my site. My mom is going to try hard to keep it updated.
|