Hello and welcome to my site. My name is Kailey Rose. I was born on 2.13.03 and came into this world with a will to live and a thirst for life. You see, I was born with the odds stacked against me. I had some heart problems, spina bifida and a cleft lip and palate.

My heart did not form like a normal heart should. My aorta was on the right side of my heart (double outlet right ventricle), and there was a big hole in between my ventricles (VSD), and most of all my mitral valve was deformed and not really working too good.


My spine was exposed from vertebrae S1-S5. I had a tethered cord, clubbed feet and Arnold Chiari malformation all associated with spina bifida. My spinal surgery was the very first surgery I had and I did GREAT! A few weeks later I had a VP shunt placed in my head to help with hydrocephalus.

When I was less then 2 months old I had open-heart surgery to correct some of my heart issues, and to replace my mitral valve with a mechanical one. I came home from the hospital less than 30 days after that.

I was born with a cleft lip and palate, and both of those were repaired after I left the NICU. On Sept 12, 2003 I had my lip repair done, and I was smiling the very next day. On January 30, 2004 I had my palate repaired and I came home the very next day!

Nothing gets in my way! I am a happy girl and I am as strong as can be!

It has been a while now since my site was updated. In February 2006 my family and I went to Turks and Caicos with the Make a wish Foundation. I spent a whole week with Elmo himself! I love Elmo! He is my favorite character ever! When we got home from that trip we moved all the way from NY to Ga!

In May 2006 I had my second mitral valve replacement, this time the surgery was done in Georgia where we now live. I recovered quickly and have gone on to thrive as usual. As a matter of fact I will be starting school full time as of January 2007! I am really excited to make new friends.

I have surgery coming up this march for my clubbed foot repair. Remember to keep me in your thoughts and prayers for a quick recovery! I hope to take my first steps soon!

Thank You for visiting my site. My mom is going to try hard to keep it updated.



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