My spine was exposed from vertebrae S1-S5. I had a tethered cord, clubbed feet and Arnold Chiari malformation all associated with spina bifida. My spinal surgery was the very first surgery I had and I did GREAT! A few weeks later I had a VP shunt placed in my head to help with hydrocephalus.
When I was less then 2 months old I had open-heart surgery to correct some of my heart issues, and to replace my mitral valve with a mechanical one. I came home from the hospital less than 30 days after that.
I was born with a cleft lip and palate, and both of those were repaired after I left the NICU. On Sept 12, 2003 I had my lip repair done, and I was smiling the very next day. On January 30, 2004 I had my palate repaired and I came home the very next day!
Nothing gets in my way! I am a happy girl and I am as strong as can be!
It has been a while now since my site was updated. In February 2006 my family and I went to Turks and Caicos with the Make a wish Foundation. I spent a whole week with Elmo himself! I love Elmo! He is my favorite character ever! When we got home from that trip we moved all the way from NY to Ga!
In May 2006 I had my second mitral valve replacement, this time the surgery was done in Georgia where we now live. I recovered quickly and have gone on to thrive as usual. As a matter of fact I will be starting school full time as of January 2007! I am really excited to make new friends.
I have surgery coming up this march for my clubbed foot repair. Remember to keep me in your thoughts and prayers for a quick recovery! I hope to take my first steps soon!
Thank You for visiting my site. My mom is going to try hard to keep it updated.
For more information or to contact us, please email ksms11@bellsouth.net.
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